10-Year-Old Crossing Items Off 'Vision Bucket List' Before Disease Robs Him of Sight
Updated: Wednesday, May 7 2014, 07:40 PM EDT
One 10-year-old boy is on a quest to see the world before a rare disease robs him of his sight, which doctors say could happen by the time he turns 15.
After a series of tests and a visit to a retina specialist, doctors diagnosed Isaac Garcia with Stargarts Disease - a juvenile form of macular degeneration. There is no cure for the disease and really no way of knowing how much time he has left with his sight. Doctors say he could have between one to four years.
In some cases it's a matter of months.
For his parents, their focus is now preparing their son for what comes next. At his elementary school Isaac is already learning to read braille.
But as Isaac's mother Kelli watched her son's struggle get harder and the disease progress, she knew she had to do more.
"That's when we started making the list," Kelli said. "We started making a list of everything he would possibly want to see in the world while he can."
His parents started the "Vision Bucket List" on giveforward.com. He's already crossed a couple of places off the list - including Las Vegas and Sedona - but there is still much more to see.
His parents plan to take a cross country trip this summer with stops at Mount Rushmore, New York City, Niagara Falls and Washington, DC. He also wants to see Rome's coliseum and a lighthouse.
While Isaac's parents watch the disease steal their son's vision they remain hopeful that advances in medical science will someday mean Isaac could get his vision back. And Isaac remains determined.
"I wanted to cure it because I didn't want other people to go through what I'm going through," Isaac said. "It's really hard."
He hopes to one day be the very scientist that helps find a cure for the disease that will eventually rob him of his sight.
In August Isaac's vision was 20/30 and has rapidly decreased to 20/70 -- which is where it is now. To contribute to Isaac's vision bucket list, CLICK HERE.